Browsing by Author "Alimohamed, Mohamed"

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    Knowledge and practices of open science among scholars and researchers in Tanzania
    (2022-12-16) David, Aneth, Bella; Alimohamed, Mohamed; Modern, Grantina; Buhomoli, Obadia, Shadrack; Muneja, Paul
    The Open Science (OS) movement has been spreading rapidly among researchers with positive outcomes on accessibility of scientific knowledge. However, there is no clear evidence on the level of awareness and types of OS practices among scholars and researchers in Tanzania, potentially missing an opportunity to reap the rewards of the movement to scholarly pursuits. This study investigated the level of awareness of OS and practices among Tanzanian scholars and researchers. Findings of a digital survey conducted for three months and recruited 144 respondents, show a high level of awareness of the term OS for 84% of respondents, most of them having encountered it from peers or online sources including social media. About 69% of respondents were male while about 44% of respondents were early career professionals. Open access (OA) publishing was the most common OS activity practised by respondents, highlighting both the need to create awareness on other practices and an entry point for knowledge expansion. However, respondents highlighted the barriers to spreading of the OS movement in the country including lack of awareness, knowledge and skills, the lack of institutional support and concerns over data security and ownership. Findings of this study establish OA as the most common and important OS practice among Tanzanian scholars. They show the importance of online resources and peers to peer learning and in spreading OS awareness. The study also reveals several areas of advocacy and including setting supportive institutional policies and building infrastructure to support OS practices. We recommend establishment of robust guidelines, institutional support and clear opportunities to incentivize individuals to adopt OS practices so as to achieve the momentum required to scale the movement beyond OA.
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    Rare diseases in Tanzania: a National Call for Action to address policy and urgent needs of individuals with rare diseases
    (2020-09-30) Alimohamed, Mohamed; Kaywanga, Frida; David, Aneth; Maeda, Daniel; Mbarak, Sharifa; Mavura, Togolani; Mbwanji, Kenneth; Nkya, Siana; Ishengoma, Deus
    A rare disease is generally defined as a condition which affects about 1 among 2000 people and currently, there are approximately 5000–8000 rare diseases (RDs) affecting over 400 million people world-wide. Although RDs may arise from different causes such as infections and environmental factors, about 80% are caused by genetic abnormalities. In Tanzania, there are no reports of the types of RDs, their incidence, distribution and numbers of individuals affected. In addition, there have been no strategies to map RDs in the country and develop a definition that fits the local context. Public awareness and understanding of RDs are very limited, and these lead to poor management and stigmatisation of patients. To address the ongoing problems, Tanzania joined other countries world-wide and global partners to commemorate the rare diseases day (RDD) for the first time in 2016 and subsequently every year. Unlike previous years where the RDD was organised by Ali Kimara Rare Diseases Foundation (AKRDF) with few partners, in 2020, a bigger event was co-hosted by Ali AKRDF and Tanzania Human Genetics Organization together with government representatives and other multiple partners. The organisers, government representatives and participants proposed a national “Call for Action” with the overall goal of improving the lives of patients/individuals with RDs. The call focuses and aims to address 17 strategic issues that are broadly categorised into four areas. These include generating demographic data of individuals with RDs; advocating for policies and guidelines for diagnosis, care, treatment and health financing; developing policies supporting public education, awareness and advocacy; and strengthening research, innovation and public–private partnerships. If adopted and implemented, the potential impacts of these recommendations will include improved access to adequate and high-quality health and education services, and policies and guidelines to address the current and future challenges facing individuals with RDs and their families.